2 papers
cs.HC2026
We Need Granular Sharing of De-Identified Data-But Will Patients Engage? Investigating Health System Leaders' and Patients' Perspectives on A Patient-Controlled Data-Sharing Platform
Xi Lu, Di Hu, An T. Nguyen +6
Patient-controlled data-sharing systems are increasingly promoted as a way to empower patients with greater autonomy over their health data. Yet it remains unclear how different st…
cs.HC2025
Supporting Patients in Managing Electronic Health Records and Biospecimens Consent for Research: Insights from a Mixed-Methods Usability Evaluation of the iAGREE Portal
Di Hu, Xi Lu, Yunan Chen +6
De-identified health data are frequently used in research. As AI advances heighten the risk of re-identification, it is important to respond to concerns about transparency, data pr…