4 citations · 6 across the 5 of their papers we have counts for
6 papers · 1 filter
We Need Granular Sharing of De-Identified Data-But Will Patients Engage? Investigating Health System Leaders' and Patients' Perspectives on A Patient-Controlled Data-Sharing Platform
Xi Lu, Di Hu, An T. Nguyen +6
Patient-controlled data-sharing systems are increasingly promoted as a way to empower patients with greater autonomy over their health data. Yet it remains unclear how different st…
Supporting Patients in Managing Electronic Health Records and Biospecimens Consent for Research: Insights from a Mixed-Methods Usability Evaluation of the iAGREE Portal
Di Hu, Xi Lu, Yunan Chen +6
De-identified health data are frequently used in research. As AI advances heighten the risk of re-identification, it is important to respond to concerns about transparency, data pr…
Investigating the effects of housing instability on depression, anxiety, and mental health treatment in childhood and adolescence
Rachael Zehrung, Di Hu, Yawen Guo +2
Housing instability is a widespread phenomenon in the United States. In combination with other social determinants of health, housing instability affects children's overall health…
Transitioning Together: Collaborative Work in Adolescent Chronic Illness Management
Rachael Zehrung, Madhu Reddy, Yunan Chen
Adolescents with chronic illnesses need to learn self-management skills in preparation for the transition from pediatric to adult healthcare, which is associated with negative heal…
Perspectives on Privacy in the Post-Roe Era: A Mixed-Methods of Machine Learning and Qualitative Analyses of Tweets
Yawen Guo, Rachael Zehrung, Katie Genuario +4
Abortion is a controversial topic that has long been debated in the US. With the recent Supreme Court decision to overturn Roe v. Wade, access to safe and legal reproductive care i…
Self-Expression and Sharing around Chronic Illness on TikTok
Rachael Zehrung, Yunan Chen
While prior work has investigated the benefits of online health communities and general purpose social media used for health-related purposes, little work examines the use of TikTo…